{"id":883,"date":"2026-04-15T01:11:01","date_gmt":"2026-04-15T01:11:01","guid":{"rendered":"https:\/\/www.edf-kivu.org\/?p=883"},"modified":"2026-04-15T01:11:01","modified_gmt":"2026-04-15T01:11:01","slug":"discrimination-envers-les-personnes-epileptiques-dans-le-camp-de-refugies-de-nakivale","status":"publish","type":"post","link":"https:\/\/www.edf-kivu.org\/fr\/discrimination-envers-les-personnes-epileptiques-dans-le-camp-de-refugies-de-nakivale\/883\/https:\/www.edf-kivu.org\/","title":{"rendered":"Discrimination envers les personnes \u00e9pileptiques dans le camp de r\u00e9fugi\u00e9s de Nakivale"},"content":{"rendered":"\n
\"\"
Photo prise par Kelvin<\/sub><\/sup><\/strong><\/em><\/figcaption><\/figure>\n\n\n\n

Article de la DDH Mireille Bonyi<\/sub><\/sup><\/em><\/strong><\/p>\n\n\n\n

Dans le camp de r\u00e9fugi\u00e9s de Nakivale, la situation des personnes vivant avec l\u2019\u00e9pilepsie demeure pr\u00e9occupante et largement ignor\u00e9e. \u00c0 travers mes observations de terrain et les t\u00e9moignages recueillis, il appara\u00eet clairement que ces personnes font face \u00e0 une discrimination persistante, aliment\u00e9e par la stigmatisation, l\u2019ignorance et des croyances erron\u00e9es.<\/p>\n\n\n\n

De nombreuses personnes \u00e9pileptiques sont victimes d\u2019exclusion sociale au sein m\u00eame de leur communaut\u00e9. Elles sont souvent consid\u00e9r\u00e9es comme poss\u00e9d\u00e9es, dangereuses ou porteuses de mal\u00e9diction. Cette perception entra\u00eene leur marginalisation, les emp\u00eachant de participer pleinement aux activit\u00e9s sociales, \u00e9ducatives et \u00e9conomiques du camp.<\/p>\n\n\n\n

Sur le plan de la sant\u00e9, l\u2019acc\u00e8s aux soins reste un d\u00e9fi majeur. Plusieurs malades n\u2019ont pas un suivi m\u00e9dical r\u00e9gulier ni un acc\u00e8s constant aux m\u00e9dicaments n\u00e9cessaires pour contr\u00f4ler les crises. Cette situation aggrave leur \u00e9tat de sant\u00e9 et augmente leur vuln\u00e9rabilit\u00e9, notamment en cas de crises survenant dans des lieux publics sans assistance appropri\u00e9e.<\/p>\n\n\n\n

Les enfants \u00e9pileptiques sont particuli\u00e8rement affect\u00e9s. Certains sont exclus du syst\u00e8me \u00e9ducatif, soit par peur des enseignants, soit \u00e0 cause du rejet des autres \u00e9l\u00e8ves et de leurs parents. Cela compromet gravement leur avenir et leur d\u00e9veloppement personnel.<\/p>\n\n\n\n

Par ailleurs, des cas de maltraitance et de n\u00e9gligence ont \u00e9t\u00e9 rapport\u00e9s. Certaines familles, par manque d\u2019information ou de ressources, abandonnent ou isolent leurs proches atteints d\u2019\u00e9pilepsie, les privant ainsi de soins et de soutien essentiels.<\/p>\n\n\n\n

Face \u00e0 cette r\u00e9alit\u00e9, il est urgent que les autorit\u00e9s comp\u00e9tentes, les organisations humanitaires et les acteurs de la soci\u00e9t\u00e9 civile renforcent leurs actions. Des campagnes de sensibilisation doivent \u00eatre mises en place pour d\u00e9mystifier l\u2019\u00e9pilepsie et lutter contre les pr\u00e9jug\u00e9s. De plus, l\u2019acc\u00e8s aux soins m\u00e9dicaux et aux m\u00e9dicaments doit \u00eatre garanti de mani\u00e8re continue et \u00e9quitable.<\/p>\n\n\n\n

La dignit\u00e9 et les droits des personnes \u00e9pileptiques doivent \u00eatre respect\u00e9s et prot\u00e9g\u00e9s. Il est imp\u00e9ratif d\u2019agir d\u00e8s maintenant pour mettre fin \u00e0 cette discrimination silencieuse et offrir \u00e0 ces personnes une vie digne, s\u00e9curis\u00e9e et inclusive.<\/p>\n\n\n\n

Version swahili<\/em><\/strong><\/p>\n\n\n\n

Ubaguzi dhidi ya watu wenye kifafa katika kambi ya wakimbizi ya Nakivale<\/strong><\/p>\n\n\n\n

Na Mireille Bonyi<\/sup><\/strong><\/em><\/p>\n\n\n\n

Katika kambi ya wakimbizi ya Nakivale, hali ya watu wanaoishi na kifafa bado ni ya kusikitisha na mara nyingi hupuuzwa. Kupitia uchunguzi wangu wa moja kwa moja na ushuhuda uliokusanywa, inaonekana wazi kuwa watu hawa wanakumbana na ubaguzi unaoendelea, unaochochewa na unyanyapaa, ukosefu wa uelewa na imani potofu.<\/p>\n\n\n\n

Watu wengi wenye kifafa hukumbwa na kutengwa kijamii ndani ya jamii zao. Mara nyingi huonekana kama watu waliopagawa, hatari au waliolaaniwa. Mtazamo huu husababisha kutengwa kwao na kuwazuia kushiriki kikamilifu katika shughuli za kijamii, kielimu na kiuchumi ndani ya kambi.<\/p>\n\n\n\n

Katika sekta ya afya, upatikanaji wa huduma bado ni changamoto kubwa. Wagonjwa wengi hawapati ufuatiliaji wa matibabu wa mara kwa mara wala dawa muhimu za kudhibiti degedege. Hali hii huzidisha matatizo yao ya kiafya na kuongeza hatari, hasa pale wanapopatwa na mshtuko katika maeneo ya wazi bila msaada wa haraka.<\/p>\n\n\n\n

Watoto wenye kifafa ndio wanaoathirika zaidi. Baadhi yao hutengwa na mfumo wa elimu, iwe kwa hofu ya walimu au kutokana na kukataliwa na wanafunzi wenzao pamoja na wazazi wao. Hii huathiri vibaya mustakabali wao na maendeleo yao binafsi.<\/p>\n\n\n\n

Aidha, visa vya unyanyasaji na kutelekezwa vimeripotiwa. Baadhi ya familia, kwa kukosa taarifa sahihi au rasilimali, huwatenga au kuwaacha wapendwa wao wanaoishi na kifafa bila huduma wala msaada unaohitajika.<\/p>\n\n\n\n

Kutokana na hali hii, ni muhimu sana kwa mamlaka husika, mashirika ya kibinadamu na wadau wa kijamii kuongeza juhudi zao. Kampeni za uhamasishaji zinapaswa kuanzishwa ili kuondoa imani potofu kuhusu kifafa na kupunguza unyanyapaa. Vilevile, upatikanaji wa huduma za afya na dawa lazima uhakikishwe kwa usawa na kwa kudumu.<\/p>\n\n\n\n

Heshima na haki za watu wenye kifafa lazima zilindwe. Ni wakati wa kuchukua hatua madhubuti kukomesha ubaguzi huu wa kimya na kuwapa watu hawa maisha yenye heshima, usalama na ushirikishwaji.<\/p>\n","protected":false},"excerpt":{"rendered":"

Article de la DDH Mireille Bonyi Dans le camp de r\u00e9fugi\u00e9s de Nakivale, la situation des personnes vivant avec l\u2019\u00e9pilepsie […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1],"tags":[],"class_list":["post-883","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/posts\/883","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/comments?post=883"}],"version-history":[{"count":1,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/posts\/883\/revisions"}],"predecessor-version":[{"id":885,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/posts\/883\/revisions\/885"}],"wp:attachment":[{"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/media?parent=883"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/categories?post=883"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.edf-kivu.org\/fr\/wp-json\/wp\/v2\/tags?post=883"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}